From a very proud mummy to her son

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   I know this is very personal for an open forum, but just wanted to share this with those of you who have shared this journey with us. 

"What an incredible journey you have lead us on, there has been so many highs and so many lows, but what a relief that you have now reached one!

We were told to take things ‘hour by hour’ when you were born at 26 weeks.  But they did not see the fighter in you, who’d show them they’re wrong, our little miracle boy, who would thrive and grow strong.

So many tears were shed in the beginning. You looked so sick and fragile under the phototherapy lights in the incubator. Daunting wires and tubing everywhere.  I had to wait 2 weeks to hold you.  Too scared to move or to kiss your head, just trying to breathe in your baby scent. 

Always hearing the words fragile…fragile…fragile…Then it was stable…stable….stable…. then ‘irreparable heart defect’, news to break anyone. Ventilator, CPAP, low flow, catherder study, laser eye surgery, three hospital transfers…home.  5 months of waiting to have you finally home.

Then back up to Auckland to hear amazing news, ‘confident of a full heart repair’! Woohoo!  But you had to do things in Jacob style, falling extremely ill, 5 days in PICU.  Fragile…fragile…stable…stable…then back home to Wellington hospital, back home again.

Who would have expected such a bright, smiley boy emerge from that tiny baby born far too early. How far you have come, how you have touched so many people, how you have taught us all so many life lessons.  How have you managed to do all this in only one year?

Never will I take for granted being able to cuddle and kiss you whenever I want.  Never will I take for granted having you home with us.  And never will I take for granted having you in our lives.

You complete our family Jacob, stay strong and well, may you have a long and happy life.

Love you" 