Epilepsy & planning for # 2
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Category: Planning Pregnancy (trying for baby)
Forum Name: Planning Pregnancy (trying for baby)
Forum Description: Trying to get pregnant? Going through fertility treatment? Just planning your first or second child? There are many people out there in the same boat to help and listen and share with
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=6061
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Topic: Epilepsy & planning for # 2
Posted By: MelandBri
Subject: Epilepsy & planning for # 2
Date Posted: 07 March 2007 at 8:29pm
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Hi. 7 mths ago I started having seizures and apparently I have epilepsy. I am on an anti epileptic drug and am wanting to start ttc in about 3 mths.
I am wondering if anyone else has epilepsy and has had a baby while on their AED's. I am concerned about havinga baby while on medication but I believe it's the best option for me. I know it would a lot harder this time around but I'm sure I could get through it with some extra help. I'd love to hear from anyone else who has been in the same or similiar situation as me. |
Replies:
Posted By: Guests
Date Posted: 07 March 2007 at 8:40pm
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Welcome MelandBri have you spoken to your dr about it all? I think they would have the best answers for you.
We are all here to support you through it all tho 
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Posted By: baalamb
Date Posted: 08 March 2007 at 1:50pm
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Posted By: MelandBri
Date Posted: 08 March 2007 at 2:00pm
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Hi Kirsten thank you so much for your reply. I was just hoping to come across someone else that had been in a similiar situation to me as I dont know many ppl with epilepsy, only males.
I am taking Tegretol and so far it seems to be helping as I haven't had any more seizures since starting it. I have read that Tegretol is one of the safer drugs to be on while pregnant as its been around for so long so there's been alot of testing on it. I have just started taking Folic Acid (although I'm unsure of exactly how much I should be taking) and a pregnancy multi vitamin. I'm waiting for an appt with my specialist to discuss all my options with him. |
Posted By: Maya
Date Posted: 08 March 2007 at 4:34pm
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Willie's ex-partner (mum to two of his older kids) has very severe epilepsy to the point where she is brain damaged as a result of continuous oxygen deprivation during some of her more serious seizures.
I don't know the names of the medications she is/was on (but there are several) but I do know that she continued taking them during her pregnancies as it was safer for her to do so than not. Her first child (my DSS) was born 6 weeks premature by emergency c-sect. They don't think the prematurity was caused by the epilepsy and/or medications, but she fitted really badly during labor hence the need for a c-sect. Her second child (my DSD) was born naturally a few days early. They decided to let her labour progress and see how she coped and she had a very quick labour and delivery with no complications. Don't know if this helps at all as I don't know what exacts meds she's on, but thought you might find it interesting. -------------  Maya Grace (28/02/03)
 (02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: baalamb
Date Posted: 08 March 2007 at 9:52pm
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Posted By: baalamb
Date Posted: 08 March 2007 at 9:57pm
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Mel, I just came across this too. Might be of interest http://www.epilepsy.com/medications/b_tegretol_pregnancy.html - Tegretol and pregnancy. There's LOADS of info on that site.
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Posted By: MelandBri
Date Posted: 09 March 2007 at 10:15am
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Thanks for that link Kirsten. I've actually joined that site as they have heaps of really good information but I had never come across that on Tegretol.
I'll go have a good read :) 1 question, I'm getting really confused on how much Folic Acid to take, of course I'll ask my neauro when I see him but that won't be for about 3 weeks. I've been told 4 mg and also 800mcg, which is only 0.8 mg. The pills I have are 0.8mg so does that mean I should be taking about 5 of them??? |
Posted By: baalamb
Date Posted: 09 March 2007 at 12:59pm
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