oral adversion
Printed From: OHbaby!
Category: Support
Forum Name: Parenting a child with special needs
Forum Description: A place for those parenting children with special needs to find support and share their thoughts
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41768
Printed Date: 14 August 2025 at 3:19am
Software Version: Web Wiz Forums 11.10 - http://www.webwizforums.com
Topic: oral adversion
Posted By: ma11man
Subject: oral adversion
Date Posted: 22 March 2012 at 9:15pm
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hi there
our daughter isla was born at 32 weeks with a rare heartcondition. She spent her first 4 months in intensive care. She is now 14 months old and doing great. She has however been tube fed her whole life. First with an ng tube now with a mick key button. I am keen to hear from anyone else in a simlar situation for information sharing thanks |
Replies:
Posted By: Raspberryjam
Date Posted: 22 March 2012 at 10:54pm
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Have PM'd you :) ------------- http://lilypie.com] 
http://lilypie.com] 
http://lilypie.com] 
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Posted By: WEB111
Date Posted: 23 March 2012 at 8:34am
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Hi there,
Your situation sounds similar to ours. I also have a baby girl with a rare heart condition who is still NG fed. She is 11 months old and we are on a waiting list for surgery for the mickey button. Happy to chat to you - PM me if you like. Would also love to hear about the surgery for the mickey button as am a bit scared about her having more surgery. What is your daughter's heart condition? |
Posted By: aims_one
Date Posted: 21 July 2012 at 3:34am
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Have you checked out the heart children roll call topic? Might be worth posting there so others with kids with heart conditions see your post. ------------- Amy |