Endometriosis
Printed From: OHbaby!
Category: Planning Pregnancy (trying for baby)
Forum Name: Planning Pregnancy (trying for baby)
Forum Description: Trying to get pregnant? Going through fertility treatment? Just planning your first or second child? There are many people out there in the same boat to help and listen and share with
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=2125
Printed Date: 16 August 2025 at 2:10pm
Software Version: Web Wiz Forums 11.10 - http://www.webwizforums.com
Topic: Endometriosis
Posted By: Simonne
Subject: Endometriosis
Date Posted: 12 April 2006 at 3:32pm
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Hey all. I was talking to Sarah about Endo this afternoon, and thought I'd float it here as well...
My doctor suggested to me about a year ago that I might have endo, and she suggested getting it checked out. I freaked (because I am a terrible wuss  ) at the time, and haven't thought much about it again until recently. As the months tick by and the baby factory remains stalled, I wonder if she might have been right. I know that endo is anti baby factory, but I never thought it was bad enough to be endo. I thought endo was horrendous. But then, maybe what I have is horrendous and I'm just used to it.
Here's how it goes:- Cramps of varying intensity (but not extreme) from O onwards (so the last 2 weeks of my cycle). AF last for around 8-9 days on average, and is relatively regular (give or take 48 hours). Days 1 and 2 of AF are horrendous (very painful, often loads of nausea, dizzyness, backache, usually diarhea (sorry - TMI, and the spelling is ...erm ...hehe ...crap! I usually get a bad headache as well). The rest of the days aren't too bad - just crampy and tiring. So ...I guess what I'm wondering is, how normal does that sound to all of you? ------------- Simonne xx ~ Established 1979 ~ |
Replies:
Posted By: caraMel
Date Posted: 12 April 2006 at 3:41pm
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hi simonne,
that sounds exactly like my periods! ------------- Mel, Mummy to E: 6, B: 4 and: 
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Posted By: Simonne
Date Posted: 12 April 2006 at 3:54pm
Oooo ...thanks CaraMel! That's hopeful, especially since you're up the duff  !
Did it take you long to conceive? I'm sort of at the "Huh...Am I broken...??" but pre-panic (well, sort of!) Stage  ------------- Simonne xx ~ Established 1979 ~ |
Posted By: mum2emj
Date Posted: 12 April 2006 at 5:17pm
sounds like me too, i used to have to take sick days or spend my first day or so of af in the toilet at work! sucked. and they were so heavy i would use both tampon and pad just to be safe 
it took me 18 months to concieve my first child, then my second was concieved when my first was 7 months old and we werent trying, and this baby was concieved first month (and ther was only once it could of happened!) i was lucky this time around i think. i too thought i might have endo, and nearly got checked myself but IM TOO MUCH OF A WUSS TOO!!!! haha. but GOODLUCK!!! ohoh, and i rememeber when it was taking ages to get pregnant very first time, i was soooooooooo stressed, and thought there was something wrong with me, i went and had an std test (just to rule that out... came back clear/....) that next month was when i concieved. i wonder if its because i relaxed a little and thought, ok if it happens it happens..... and i just enjoyed sex with hubby rather than stress baby sex!!!! lol (hope that not tooo grosse!) |
Posted By: Guests
Date Posted: 12 April 2006 at 5:52pm
I was diagnosed with Endo when i was younger, had surgery but my gynae was a muppet, so i waited a few more years and in 2004 went and saw a specialist and told her all my symptoms and she said YEP endo and i had surgery to remove it, all i can say is if u have endo look at getting it removed soon coz when i had mine removed it had just started growing on my ovaries, my bowel was riddled with it and now i have issues there 
My symptoms were: - Heavy clotting periods that lasted over a week - Extremely painful i was in a ball and crying ended up on codeine for them - Mood swings i was a real biznitch lol apparently i had PMS 2 weeks outta 4 lol - Horrid Back pain - Intense Nausea and just in general felt like the whole world hated me lol I was diagnosed with Stage 3 endo stage 4 is the worst and PCOS, tried for a year after surgery to no avail, was put on a round of clomid CD 2 - 6 and were so determined to make it work that it did Now im 13 weeks away from our little princess hehe
Where in NZ are you? |
Posted By: caraMel
Date Posted: 12 April 2006 at 6:06pm
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i'm one of the lucky ones simonne, i've concieved twice now without really having to try. my mum was the same apparently so i guess i've inherited some kind of fertile genes! i've got my fingers crossed hard that it happens for you soon hun *****baby dust**** ------------- Mel, Mummy to E: 6, B: 4 and:
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Posted By: lenabeanz
Date Posted: 12 April 2006 at 6:44pm
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My sis in law has it and she said that "relations" are real painful - not sure on the severity of hers but she's had an ectopic and a m/c - but that is also a family problem (her mum and 4 m/c and 2 children and no endo oh and a hysterectomy after my man was born) ------------- http://www.snugglepie.com"> 
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Posted By: Guests
Date Posted: 12 April 2006 at 6:48pm
| Relations werent painful for me but i couldnt let him go deep would get uncomfortable. |
Posted By: Simonne
Date Posted: 13 April 2006 at 8:02am
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First things first ...Jess - I'm in Auckland (I live in Hillpark in Manurewa).
I must admit that my symptoms are nowhere near as bad as they were when I was on the pill, and some months (few, but some) are ok (hassle-free AF), while others are pretty interesting! Mostly though, the pre-AF cramps are sharp, niggly, annoying cramps, as opposed to debilitating ...it's just the first few days of AF which are really bad. When I was on the pill, I'd often get horrendous pain after ....mmpmfm ....but that stopped the instant I stopped taking the pill. I might make a diary of my symptoms for a couple of months, so that if/when I see the Dr, I have a clear idea of what happens when and how. Thanks so much for the baby dust caraMel!! ------------- Simonne xx ~ Established 1979 ~ |
Posted By: Guests
Date Posted: 13 April 2006 at 8:12am
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Simonne - Thats cool was just wondering if you lived in Wellington coz if you did was gonna tell you about me specialist she was awesome. I had all my surgery done through medical insurance coz i could get it with no exclusions through work woohoo!!!
I hope they suss something out for ya soon
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Posted By: Simonne
Date Posted: 13 April 2006 at 8:22am
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Thanks sweets!!
You've gotta love this waiting game Hopefully, it's just that I'm a stress-ball ...I just remembered about the endo question yesterday and thought "Hmmm". You know how you do! ------------- Simonne xx ~ Established 1979 ~ |
Posted By: Guests
Date Posted: 13 April 2006 at 8:30am
Yer thats all good and fair enough, and if it comes down to it dont worry bout the surgery its actually not that bad i have had 3  hehe only 2 for Endo tho lol and plus it means lots of ice cream and fussing hehe etc etc
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Posted By: Simonne
Date Posted: 13 April 2006 at 8:37am
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Ooooo ...fussing. This is sounding better already ------------- Simonne xx ~ Established 1979 ~ |
Posted By: Guests
Date Posted: 13 April 2006 at 9:29am
| heheh yep mum came down from auckland and fussed over me and apparently when i was in surgery cory was almost walking all over himself all worried so he fussed over me to lol |
Posted By: KH25
Date Posted: 13 April 2006 at 10:33am
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I had mild endo removed last year. I had been on the pill for around 10 years so pre pill is a bit hard to remember. I do know that I would get very bad period pain and alot of time actually vomit from the pain. Don't remember getting pain outside of my period though (I was only 14/15 so didn't really take much notice!!) So anyway doc put me on the pill and it got better. Then in the last few years I was getting pain during my period when I passed a bowel motion also had diorhhea (sp?) and still had period pain - sometime painful intercourse. Doc sent me to a private specialist (in Auckland, meant to be the best - let me know if you want her details!!) She thought it was endo and did a laparoscopy and removed it. Was on my bowel , bladder and some ligaments going to my back (oh yeah used to get bad lower back pain) That was in February. Decided to come off pill in August and conceived on my fourth cycle off the pill. I have family history of problems conceiving so was surprised that it happened reasonably fast. Not sure if the surgery helped or not as the endo wasn't on any reproductive organs but I think they do a D & C as a standard so that may have helped. Anyway good luck, hope you won't need to pursue this option but do keep it in the back of your mind because if left untreated can cause worse problems! ------------- Kelly, mum to DD, 19Jun06 (26wks 1lb15oz) DS1, 24Oct10 (32wks 4lb11oz) and DS2, 31Dec11 (32wks, 4lb11) http://lilypie.com"> 
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Posted By: Simonne
Date Posted: 13 April 2006 at 10:47am
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Thanks Kelly I appreciate your input
If you don't mind, if you felt your specialist was really good, I wouldn't mind her details to keep up my sleeve (if I need to pursue it, I'd rather use someone that someone else has had experience with). Thanks! ------------- Simonne xx ~ Established 1979 ~ |
Posted By: KH25
Date Posted: 13 April 2006 at 11:27am
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No worries Simonne, Here is a link to a bit of a bio about her!
http://www.endometriosis.co.nz/wa.asp?idWebPage=6470 ------------- Kelly, mum to DD, 19Jun06 (26wks 1lb15oz) DS1, 24Oct10 (32wks 4lb11oz) and DS2, 31Dec11 (32wks, 4lb11) http://lilypie.com">
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Posted By: Simonne
Date Posted: 13 April 2006 at 11:33am
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Thanks!! ------------- Simonne xx ~ Established 1979 ~ |
Posted By: jack_&_charli
Date Posted: 13 April 2006 at 2:29pm
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simonne i too have endo and also PCOS. i've had 2 laproscopys, one to remove ovarian cysts and the other to remove the endo. it was stage 3.
i'd have painful pre AF cramps and back pain and very random, sudden sharp stabbing pains in my lower belly that would go just as quick as they came. pooing was also often painful, (sorry if TMI) and stabbing pain during 'relations' was a common occurance and usually bought an end to things as i'd be in tears 
unfortunately, the only way to know for sure if you have endo is a laproscopy but they aren't that bad and yes, it's worth it for all the fussing 
aside from all that, both my babies were conceived within 2 wks of trying....i'm not bragging i just wanted you to know it doesn't mean you will have probs.  ------------- http://www.alternatickers.com"> 
http://lilypie.com"> 
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Posted By: Simonne
Date Posted: 13 April 2006 at 2:57pm
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Thanks Jacks Mum!
I think I should definitely monitor what happens with me over the next couple of months ...though I really don't think I suffer to the degree that some of you gals are/have! You poor, poor things ...I'm trying to imagine my stuff exponentially worse ...  Yikes!
Oh ...by the way ...I hope you all have a wonderful long weekend ------------- Simonne xx ~ Established 1979 ~ |
Posted By: jax
Date Posted: 14 April 2006 at 10:19am
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I know I'm coming into this topic a bit late, but they suspected I had endo, but were going to get me to wait the standard 12 cycles before they did anything invasive... never got that far though as you can see ! What you described sounds pretty similar to what I used to go through too Simonne... ------------- Jacquie - Mama to Erin, 13.07.06 - Chief Cat Chaser & Marmite Sammie Eater 
Love many, trust few, harm none. ~Anon~ |
Posted By: Simonne
Date Posted: 18 April 2006 at 8:48am
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Thanks Jax
It's really reassuring, helpful, and good, to get input from all of you ...especially so since some of you have suffered worse/ or have experienced similar cycles and are very preggers
------------- Simonne xx ~ Established 1979 ~ |
Posted By: mum2paris
Date Posted: 18 April 2006 at 8:55pm
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not wanting to hi-jack the thread but am wondering if this could be my prob.. have wondered for many many years, but now things are becomming worse and worse.
pre-babies, i have always had horrendous periods, at least 9 days or more, cramps so bad i would struggle to get out of bed some days, headaches, nausea, all of what has been described by others. am pretty sure that is why i was glad to become preggers.. for the most part that stopped, and i was overjoyed to be free of periods for that time. Then, when paris was 5 months old, periods returned. still just as long, and with all of the above. only now i would get major abdominal cramps stabbing pains randomly all over my tummy, (like when you have food poisoning - they investigated me for gallstones but found nothing) and I would have areas where i could feel a painful fullness, like something wasn't quite right. Most nights when i had my period i would wake up shivering, cold, shaking uncontrollably, nauseated and in a heap of pain. I would get the upset tummy, diarhoea, and all of that area "downthere"and even the inner top parts of my legs would be a cold numb hurting feeling. I hated it!!! sometimes, if it was really bad, it would just come on suddenly in the middle of the day as well. It had only just begun to be less frequent when paris was about 1 year old, and i then became pregnant with Ayja. now, i thought YAY, when this time perios returned and weren't too bad, and well they took alot longer to start up again anyway. but now, after 2 regular cycles, it has all started up again. last night i woke with the shaking, and numbness is worse than ever today. probably all a load of too much info.. but it is seriously affecting me. i mean i used to be a bit natsy when i had my period, but now, i am nasty a few weeks leading up to it cos i get constant mildish pains(by my standards) but during AF I am pretty much an insane scary lady - and i know it but cannot control it cos i feel so horrible. does this sound like Endo? Am probably a bit scared to actually go to doc and find out. I mean for me, i am not trying to conceive - it's more about actually getting through the day and being up to looking after the kids without snapping every 2 seconds or being completely unreasonable. ------------- Janine and her 2 cool chicks, Paris & Ayja 
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Posted By: jax
Date Posted: 18 April 2006 at 9:05pm
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Four words for you lady (Janine)...
GET IT CHECKED OUT ! For me even initially having it investigated wasn't just about babies, it was really starting to affect my *whole* life.
------------- Jacquie - Mama to Erin, 13.07.06 - Chief Cat Chaser & Marmite Sammie Eater
Love many, trust few, harm none. ~Anon~ |
Posted By: Simonne
Date Posted: 19 April 2006 at 7:54am
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Well ....it sounds like something Janine ...I'm with Jax. Off to the doctor you should go! You must be spending your 'feeling good' time terrified about the 'feeling like death (barely) warmed up times'.
I know when I finally went to my doctor about a particular symptom I was having (dreadful pain that would just come from nowhere and drop me where I stood!), she acted really, really fast and ran a battery of tests, including ordering me off to an internal and external ultrasound quick smart. It's such a reassuring feeling too for someone to go "That is not right. We have to find out what is causing this problem." As for hijaking the thread ...don't be a dumbarse I'm glad that me raising it has given you the chance to talk! That's what this is all about ...knowing we're not alone, and getting some gal-support!
I really, really hope you get things looked into, and that you get some relief/answers! ------------- Simonne xx ~ Established 1979 ~ |
Posted By: jack_&_charli
Date Posted: 19 April 2006 at 8:47am
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janine that sounds horriffic!!! get to the docs quick smart young lady!!!!!!!!!!
if it is endo, it can be removed by a simple operation which is keyhole surgery so no biggie. you poor thing having to suffer so much, no wonder you are a insane scary lady! please, please get to the docs soon so they can help you ------------- http://www.alternatickers.com">
http://lilypie.com">
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Posted By: Guests
Date Posted: 19 April 2006 at 10:45am
| Yer im with everyone else get to a dr and make sure u explain EVERYTHING!!! Having Endo isnt that scary just as long as you deal with it and know what it is all about, if your dr reckons u could have it they may refer you to a specialist who will then probably want to do a lap which is nothing! Just remember that if this is getting worse and you eventually want another baby it could affect that, i had endo just starting on my ovaries and that scared the crap outta me. |
Posted By: Leish
Date Posted: 19 April 2006 at 10:55am
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OMG - i can't believe that you girls go through that These pains and symptoms just sound terrible and make me cringe just reading them. I must be really soft.
Janine - get thee to a DR!! You should just print off your post and take that to them - I know I always forget something when I am in the DRs and you describe everything really well in there. |
Posted By: Simonne
Date Posted: 19 April 2006 at 11:30am
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*LOL* You shoulda seen me on Saturday then Leish! I had a dreadful day-before-AF headache/migrane, and spent the entire day sleeping and vomiting and only got out of bed to go to the hospital to see SIL (in labour) and then my niece! The trick was trying to get into the maternity ward without chucking where a nurse might see/hear me, (and, of course, not chucking long enough to actually get down the corridor!) as they had signs everywhere that if you had certain symptoms (eg VOMITING!) you weren't allowed in I knew it was AF, but they mightn't have believed me It's actually quite funny in retrospect, but at the time it was a bit rough! ------------- Simonne xx ~ Established 1979 ~ |
Posted By: Leish
Date Posted: 19 April 2006 at 11:32am
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Seriously - who would want to be a woman!! I feel sorry for myself when AF comes and thats only cos I have a little bit of a sore back or a few niggly cramps but NOTHING like you girls. I better not tell my hubby or else he might stop being so nice to me
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Posted By: Simonne
Date Posted: 19 April 2006 at 12:00pm
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Definitely don't tell hubby!
I also think the whole AF thing confirms that the feminists have it wrong too ... God is not a woman. God is a man, and men really have no idea! ------------- Simonne xx ~ Established 1979 ~ |
Posted By: Guests
Date Posted: 19 April 2006 at 1:07pm
| God is totally a man i larfed when my midwife said god is a man coz if god was a women a pregnancy would finish at 36 weeks lol |
Posted By: Simonne
Date Posted: 19 April 2006 at 1:22pm
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Yeah ...I must admit the whole pregnant for nine months, but actually 40 weeks thing has always made me a bit cross-eyed I don't know if you meant that Jess, or else just the whole ninth month argh-ness thing! Either way ... ------------- Simonne xx ~ Established 1979 ~ |
Posted By: Lulu
Date Posted: 04 May 2006 at 8:01am
I know this is really late input, but I thought you may be interested in knowing that I have been seeing a Naturopath for a couple of months, and he says that pain of any kind is not 'normal' with periods. Us girls have just come to accept it as the 'norm', but if your body is completely balanced you should not experience pain, clotting, etc. I was dubious, but after just one month on some natural supplements that he prescribed I no longer experience ANY period pain, clotting, heavy bleeding, etc. I now have a pain free, light short period, bliss! Now I am just waiting to get pregnant! 
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Posted By: ginger
Date Posted: 04 May 2006 at 9:58am
Eh? What? You're joking?! 
What are you taking?? ------------- Cuinn Lachlan 23.1.09 - 22:00 Antonia Helene 4.8.11 - 09:41 |
Posted By: Lulu
Date Posted: 04 May 2006 at 1:31pm
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A combination of Bayberry, CLT-X, S.P.P.C, Magcal Plus and Chaste-tree fruit capsules. I think most of them are available from health food shops, although some have 'for practitioner dispensing only' written on them. Probably best to get a naturopath to prescribe the correct dosage and combination for you.
I'm completely serious - it has worked a treat! My naturopath ended up specialising in fertility by accident as his main thing was working to get people 'balanced'. For example, working with women with irregular cycles or painful periods, etc. Fertility ended up being a 'side effect' of being balanced. |
Posted By: ginger
Date Posted: 05 May 2006 at 7:57am
Go figure!! That's fantastic that it's worked though ...you must feel like a new person when AF rolls around! It sounds much more pleasant than curled up clutching a wheat sack whilst having your head jammed down the toilet, revisiting whatever you ate in the last month!!  ------------- Cuinn Lachlan 23.1.09 - 22:00 Antonia Helene 4.8.11 - 09:41 |
Posted By: Lulu
Date Posted: 05 May 2006 at 9:57am
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For sure
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