Endometriosis and ttc
Printed From: OHbaby!
Category: Planning Pregnancy (trying for baby)
Forum Name: Planning Pregnancy (trying for baby)
Forum Description: Trying to get pregnant? Going through fertility treatment? Just planning your first or second child? There are many people out there in the same boat to help and listen and share with
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=19618
Printed Date: 19 August 2025 at 4:07pm
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Topic: Endometriosis and ttc
Posted By: Konagirl
Subject: Endometriosis and ttc
Date Posted: 30 July 2008 at 8:12am
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Hi everyone,
I went in to have surgery on a painful ovarian cyst last week and it turns out I have endo. The cyst was from it as well as areas of scarring around area including a blocked right tube. I'm so damn sore right now but also of course a little worried about weather we'll have a preg without IVF. The doc thought our best chance will be in the next few months. So just wondering who else is is a similar position and any suggestions you might have. I think I'll post this in the preg forum as well as it'd be interesting to see if anyone has managed to get preg with endo. Thanks |
Replies:
Posted By: jack_&_charli
Date Posted: 30 July 2008 at 8:41am
hey there......i hope your resting up after your surgery...i've had 2 now and they are more painful than a c/s!
i have endo and PCOS and was told if i didn't conceive after 6mths of trying, then to go back to the specialist and they'd help...........but both my kids were 'first night trying' babies!! 
so try not to worry, just yet.....wait and see what happens, you may not have any problems at all 
 ------------- http://www.alternatickers.com"> 
http://lilypie.com"> 
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Posted By: Konagirl
Date Posted: 30 July 2008 at 8:48am
| Yay, thanks, that's really cool to hear! Was a little worried there was no point even trying as preg without ivf wasn't likely. |
Posted By: katie1
Date Posted: 30 July 2008 at 9:08am
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I have it and got pregnant both times quickly also.
I have had other friends who have also had no trouble. Try not to worry in the meantime. Hope you feel better soon. |
Posted By: mummy_becks
Date Posted: 30 July 2008 at 1:26pm
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I have it as well, and have had my boys on the first month of trying so it does happen. ------------- I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived! |
Posted By: Guests
Date Posted: 30 July 2008 at 1:32pm
Hi Konagirl. I too have recently had surgery for removal of a cyst on my ovary and removal of endo. The cyst disappeared on its on accord (as they do  ) and I ended up having the endo lasered off. I was very sore after surgery for at least two weeks, don't force yourself to get up and about too early. Today I had my follow up appointment with the Specialist and it turns out I am not ovulating (I only have the one ovary) so I will be starting Clomid in the up coming days.
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Posted By: Guests
Date Posted: 30 July 2008 at 1:53pm
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Sorry to butt in on your thread Konagirl but Jezsika do you have any advice for someone just starting out on Clomid? I will also post in the infertility thread, |
Posted By: Treen
Date Posted: 30 July 2008 at 6:26pm
| Hi girls, how did you find out you have endo and PCOS? Can anyone recommend a doctor or a specialist to go to to find out? I've always had irregular periods and am currently on CD55 with no signs of AF. I'm wondering whether I could have endo or PCOS? I've done 3 HPT, which have all been negative so it's not that. |
Posted By: Treen
Date Posted: 30 July 2008 at 8:45pm
| Thanks for that, Jezsika, I really know nothing about TTC! |
Posted By: Emily281
Date Posted: 31 July 2008 at 7:16pm
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Hi Konagirl
I'm having surgery for suspected lap on Tuesday. My surgeon told me that for women with endo pg rates double after surgery. He also told me to try for 6 months after the lap and then we could move onto IVF - and that given that I'm so young (27!) I could even try for 12 months if I wanted to. I think if there wasn't any hope of getting pg naturally after the surgery they wouldn't tell us to do it. He told me not to TTC for 1 month after surgery and then go for it because the 6-12 months after surgery is when you have the best chance of conceiving. ------------- TTC#1: Jan 07 Aug 08: Lap found and excised Stage 3 Endo Nov 08: 2nd lap clear - given OK to TTC after next AF |
Posted By: tiptoes
Date Posted: 31 July 2008 at 9:47pm
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Hey there, I've got endo too. I just had my specialist appointment this week so am finding out if I can get it done privately and if not it will be public. For those of you that had laps down publicly how long did you have to wait?
We've been trying for 9 months so far. He mentioned possibly trying clomid if the surgery doesn't work. Glad to hear my chances double after surgery, now just to get it done! ------------- http://alterna-tickers.com">  
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Posted By: mummy_becks
Date Posted: 31 July 2008 at 10:44pm
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Publicly I had to wait 4 months (that was in 2003) and privately it was 2 weeks. ------------- I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived! |
Posted By: Emily281
Date Posted: 01 August 2008 at 7:39am
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Hey Chelle
I think it depends on where you are and who your specialist is. I'm in Christchurch and had my appointment with the surgeon on June 25 and the first surgery date he had available was 5th August (but he had just come back from holiday). AngieBabe is in Wellington I think and she has had to go public for hers and they told her it would probably take 6 months. ------------- TTC#1: Jan 07 Aug 08: Lap found and excised Stage 3 Endo Nov 08: 2nd lap clear - given OK to TTC after next AF |
Posted By: tiptoes
Date Posted: 02 August 2008 at 1:46pm
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wow, that's quick emily, i'd jump on a plane and go to chch if it meant less of a wait but I guess it doesn't work that way.
Looking forward to hearing how it all goes later this week, good luck :) ------------- http://alterna-tickers.com">
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Posted By: AngieBabe
Date Posted: 02 August 2008 at 1:56pm
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Yep Emily is right - I'm in Welly's and have been told to expect a six month wait (I'm currently at about month two of that and still don't actually have a surgery date yet)... since I live Kapiti Coast I am actually going into Kenepuru for my surgery and have been told that's a slightly shorter wait than Wellington Hospital.
I was looking at private and after my specialist's appointment it would have been just a two week wait but insurance declined (the bastards!) so had to switch over to public. The wait for public really does depend on which DHB you're under though. Edited for my very poor spelling! ------------- http://lilypie.com" rel="nofollow">  
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Posted By: tiptoes
Date Posted: 02 August 2008 at 3:36pm
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Did the insurance decline because it was for fertility? Did you tell them that it was? I'm going to try for private too but I'm guessing they'll decline. ------------- http://alterna-tickers.com">
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Posted By: AngieBabe
Date Posted: 02 August 2008 at 6:32pm
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Well to be honest we knew it was a bit touch and go on actually getting them insurance to pay mainly because of the pre-existing condition thing.
Definitely DO NOT say it is for fertility issues, if you do it is my understanding you'll certainly get declined then. My specilist, while a fertility specialist, is also a Gynie so put it the correspondance on his private practice letterhead rather than his FA one - my problem was that Southern Cross requested my medical notes and they showed I had had an ultrasound prior to my signing up which showed a 'possible' cyst and that I had had painful periods for some time, so they deemed it all pre-existing and therefore declined my claim. I'm frustrated mainly because with that initial scan nothing was conclusive or actually diagnosed but it appears 'pre-existing conditions' also covers 'early symptoms' so that was the out-clause loop-hole for them not to pay. ------------- http://lilypie.com" rel="nofollow">
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Posted By: Treen
Date Posted: 02 August 2008 at 6:55pm
| Oh no, that sucks, AngieBabe, thanks for the heads up, though. xx |
Posted By: Henna79
Date Posted: 02 August 2008 at 7:03pm
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I have endo and had a few other issues as well and got pregnant naturally just over a year after lap surgery. The month before we were gonna start IVF!!!
Good luck!! |
Posted By: Emily281
Date Posted: 02 August 2008 at 8:01pm
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Hey Chelle
Sorry forgot to mention mine is private - that is why is was so quick. I was trying to point out that even if you go private it could be a couple of months before you acutally get the surgery. and like Angie said don't mention that it's for fertility. My surgeon also said not to mention that I've had 'symptoms' since I was a teenager. Fortunately for me my pre-existings are covered anyway and I had my gall bladder removed through laparoscopy 3 years ago and they saw no sign of endo but he said he's seen the insurance companies looking for reasons to reject claims lately. Also, I would say if you are going for pre-approval ring - don't use the online form. There were a lot more questions on the form than I got asked over the phone - maybe because they could see my policy and my history but on the form they asked when you first started having symptoms and when you first sought treatment but they didn't ask me those on the phone. ------------- TTC#1: Jan 07 Aug 08: Lap found and excised Stage 3 Endo Nov 08: 2nd lap clear - given OK to TTC after next AF |
Posted By: tiptoes
Date Posted: 05 August 2008 at 7:40pm
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Did you have your laparoscopy today Emily? I hope everything went well :) ------------- http://alterna-tickers.com">
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Posted By: Candkids
Date Posted: 06 August 2008 at 1:14pm
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hi ladies, i found out i have endo about 4.5 yrs ago after i was hospitalised screaming in pain.
they told me there was a slim chance i would be able to concieve naturally again, so when dh and i started trying we thought it may take a while, but we got PG the first month! the doctor was utterly stunned! 
were going to TTC#3 early next year ------------- http://lilypie.com" rel="nofollow">  DD 10.5yrs DS 6yrs DS 11mths 5 little angles watching from above |
Posted By: Emily281
Date Posted: 08 August 2008 at 11:57am
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Hi Chelle
Yes I had my lap on Tuesday. Still feeling quite sore today but am getting better. I have to say that this one has been more painful than the one I had to remove my gallbladder but from what he told me he had to do quite a bit of work in there. He found endo under my ovaries on both sides and in the cavity behind my uterus, he also found adhesions where I'd had my gallbladder removed and on my bowel (which he said I was probably born with but he removed anyway). He said the worst of it was in the cavity behind the uterus and because of that he gave me a stage 3 classification. He also said that my ovaries had dropped down into the deep pelvis so he pulled them up and stitched them in place and wants to do another lap in 3 months to make sure they have stayed in place. ------------- TTC#1: Jan 07 Aug 08: Lap found and excised Stage 3 Endo Nov 08: 2nd lap clear - given OK to TTC after next AF |
Posted By: tiptoes
Date Posted: 08 August 2008 at 6:01pm
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Does that mean you can start TTC from this month?
What do your results mean in terms of fertility and being on the waiting list? If too personal, no worries :) ------------- http://alterna-tickers.com">
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Posted By: Emily281
Date Posted: 08 August 2008 at 6:57pm
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He already said that we couldn't TTC for 1 month after the lap. Fortunately I had AF during the lap so it will only take us out for 1 cycle. But I'm assuming if he wants to do another lap in 3 months that we can't TTC until after that. We didn't really talk about it much so will ask him at my next appointment (which is in 1 month).
As for fertility it should improve things. He didn't find any endo in my ovaries or tubes and he said my uterus is fine so everything looks ok. I'm assuming that the reason we haven't conceived yet is because my ovaries were being pulled down. He did tell me at my original appointment that I had a cyst on one side which quite often pulls the ovary down so the egg can't get out. Given that he said he pulled both of my ovaries up I guess both were hanging down. So if they stay up we should be good in terms of fertility. He basically said at my original appointment that fertility rates double after surgery and we should try for 6 months on our own and then move onto IVF. Not sure what our chances of public funding will be given that I have stage 3 endo but none of it was found in my ovaries or tubes. So its just back to waiting - waiting to see when we can TTC again, waiting to TTC, waiting to see if we can do it naturally, if not waiting for IVF. Infertility certainly teaches you patience - if nothing else!! ------------- TTC#1: Jan 07 Aug 08: Lap found and excised Stage 3 Endo Nov 08: 2nd lap clear - given OK to TTC after next AF |
Posted By: tiptoes
Date Posted: 08 August 2008 at 7:02pm
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Totally agree about it teaching you patience!! I'm figuring that's some kind of life lesson I'm learning right now too. Good to hear the lap doubles your chances - yay!!!
I've got my next appointment in about 1 1/2 weeks and then I think we'll be booking my lap, then waiting for that.... hopefully insurance comes through and it won't be too long. He mentioned we could do it the next week if it was private so that's goal one for me!! I think then he wants me to try clomid, but I'm not sure how long after the lap I wait till I do that. I'll try and remember to ask next time. ------------- http://alterna-tickers.com">
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Posted By: Emily281
Date Posted: 08 August 2008 at 9:46pm
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We're going to keep trying the natural route. All my blood tests have come back normal and I'm definitely ovulating so at this stage there's no reason to think there's any problems other than the endo. If we don't get pg within 6 months though I'll be going back to the fertility specialist. ------------- TTC#1: Jan 07 Aug 08: Lap found and excised Stage 3 Endo Nov 08: 2nd lap clear - given OK to TTC after next AF |
Posted By: AngieBabe
Date Posted: 09 August 2008 at 3:17pm
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Sounds like you are very similar to me Emily so I'll be watching how you go with doubled interest! My specialist is predicting I'll be grade 3 as well and after a fertility semiar I went to that helps get us enough points for public funding if it does get to IVF... I have also been told about the chances increasing after the lap and I too have good bloods etc so it seems (fingers tightly crossed) that it's just the endo holding things up for me too... and again I was told six months after lap then onto next stage if no BFP by then.
Now I just gotta wait for my surgery - rang to update my contact details and checked on waiting list times - was told they're saying six months though they are actually getting in just under that time, so I'm thinking around Nov/Dec and i'll be all go for me! ------------- http://lilypie.com" rel="nofollow">
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Posted By: tiptoes
Date Posted: 10 August 2008 at 9:36am
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Glad to hear the waiting list is less than 6 months angiebabe as I'll probably be on that list shortly too :) ------------- http://alterna-tickers.com">
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Posted By: Emily281
Date Posted: 10 August 2008 at 4:29pm
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Hi angie - I hope you get your surgery soon. I'm kind of hoping that when I go back to see the surgeon he says we don't have to wait until after the second op to TTC again, but I doubt it! So I'll be going back in November and it looks like we'll both be able to get back to TTC at the same time! ------------- TTC#1: Jan 07 Aug 08: Lap found and excised Stage 3 Endo Nov 08: 2nd lap clear - given OK to TTC after next AF |