update from me-we are all home for now
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Forum Name: First baby? Second or more?
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Topic: update from me-we are all home for now
Posted By: tashzmum
Subject: update from me-we are all home for now
Date Posted: 10 May 2008 at 10:01am
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for those who have been following all my twin dramas here is an update while i have a spare half hour!
so far this is what has happened....... carolines official cardiac diagnoses are- 1- critical pulmonary stenosis, 2- midly dysplastic right ventricle, 3- moderate hypoplastic right ventricle and tricuspid valve. cardiac operations 1- cardiac catheterisation with pulmonary valve dilation, 11-4-08 (didnt work)-5.5 hour op 2- right modified BT shunt, 22-4-08 (didnt work)- 6 hour op 3- central aorta to mpa shunt, 23-4-08 (worked)-6 hour op. non cardiac diagnoses balanced pericentric inversion involving one homologue of chromosome 1( i dont really have an understanding of that as i havent met with the genetics people yet) transferred out of nicu to ward 23b in starship on the 16-4-08 and after her first shunt she was put into picu and she stayed in picu until the 28th then was transferred back to 23b and then we finally came home on tuesday night and we have been super busy since then. caroline at this stage is doing great. i have a set of scales and and o2 moniter at home as i have to weigh her twice a week and take her saturations too. i met with the homecare nurses and a whole lot of other people at waikato yesterday and she also had her stitches taken out. she is gaining weight as she should and feeding like there is no tomorrow!! i have some sort of feeding routine for feeding the twins. i tried feeding both at the same time the other night but it just didnt feel right!we will be back in auckland in amonths time for her to be reviewed and checked over there and discuss the next step as there are several options as the what the cardiac team will do next but it all depends on how her heart grows.she will need at least one more operation within the next 4-5 months. if anyone wants to keep following our journey with her i am going to set up an online diary and i will post the link back here. ------------- Natasha Jayde, 1-01-05(7lb3oz) Caroline Elisabeth, 9-04-08 (4lb15oz) Izabella Kate, 9-04-08(6lb7oz) Lexi Brenna, 23-01--2011(6lb6oz) |
Replies:
Posted By: mum2paris
Date Posted: 10 May 2008 at 10:18am
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Wow Hollie i didn't even know you'd had the babes.
How early were they? Sounds like you've all been through a heck of alot, heart kids are a bit scarey at the best of times but am sure you'll become very much expert at all that stuff really quickly. Have you been in touch with you local "heart children" branch, they're wonderful and can put you in touch with others who are going though/have been through all the same stuff. Hope Caroline continues to do well and congrats! ------------- Janine and her 2 cool chicks, Paris & Ayja 
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Posted By: jack_&_charli
Date Posted: 10 May 2008 at 11:06am
awesome! i'm glad you are all home and caroline is doing well after such a rough start, long may it continue ------------- http://www.alternatickers.com"> 
http://lilypie.com"> 
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Posted By: susieq
Date Posted: 10 May 2008 at 11:51am
| Glad to hear you are home and Caroline sounds as tho she is doing well |
Posted By: Kels
Date Posted: 10 May 2008 at 1:54pm
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WOw I didnt even know you had had the girls either. Congratulations and Im glad to hear you are all home safetly. GLad Caroline is doing well too ------------- http://lilypie.com"> 
Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs |
Posted By: kabe
Date Posted: 10 May 2008 at 1:56pm
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Glad to hear you're home. Was wondering how Caroline was doing. take care ------------- http://alterna-tickers.com"> 
http://lilypie.com"> 
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Posted By: cuppatea
Date Posted: 10 May 2008 at 1:58pm
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I didn't know either, glad to hear you are all home and it sounds as though Caroline is thriving. Congratulations ------------- 
 
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Posted By: my4beauties
Date Posted: 10 May 2008 at 2:06pm
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Thanks for the update! Great to hear Caroline is doing so well. And how is Izabella doing? You sound like you're doing a fab job with them!
Would love to read your online diary as well. ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow"> 
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Posted By: mummy_becks
Date Posted: 10 May 2008 at 2:14pm
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Yay that is so good she and you all are finally home. ------------- I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived! |
Posted By: Mikki
Date Posted: 10 May 2008 at 2:28pm
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hey hollie, glad to hear your home finally, must be a big relief to finally be back in your own home, glad to hear baby caroline is doing well, twins must be a handful, but sounds like your coping really well, and i am sure their big sister is helping too! ------------- http://lilypie.com" rel="nofollow"> 
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Posted By: emz
Date Posted: 10 May 2008 at 5:00pm
Wow didn't know either! Congrats anyway! Sounds like Caroline's doing well. Hope you're doing well too 
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Posted By: busymum
Date Posted: 10 May 2008 at 5:22pm
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I also didn't know. Well done, hang in there it sure sounds like it has been scarey at times. How's your older DD doing? -------------  |
Posted By: tishy
Date Posted: 10 May 2008 at 9:52pm
Congrats and I hope all goes well 
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Posted By: Rachael21
Date Posted: 10 May 2008 at 10:03pm
| Aww yay glad your back home. I have no idea what any of that meant but it sounds scary so I'm glad shes doing so well. |
Posted By: Maya
Date Posted: 11 May 2008 at 1:24pm
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Yay Hollie, glad to hear you guys are all home, and that Caroline is doing well! Sorry I haven't been in touch earlier, I did know you'd had the girls coz I'd seen your updates in April babies, but have been so busy, and sounds like you have been even busier. Am hoping to make a trip to Hamilton when I go on leave in a few weeks so will have to try and come and visit! ------------- Maya Grace (28/02/03)
 (02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: tashzmum
Date Posted: 16 May 2008 at 8:24am
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thanks ladies...
i had them at 38 weeks so not to bad. i had a ceaser as the cardiology wasnt to sure how well caroline would handle the whole birth process. tash is doing good. she is adjusting to life with new sisters and izzy is doing great. doing everything she is ment to do. i am in the process of setting up the diary.a bit more work then i thought!! ------------- Natasha Jayde, 1-01-05(7lb3oz) Caroline Elisabeth, 9-04-08 (4lb15oz) Izabella Kate, 9-04-08(6lb7oz) Lexi Brenna, 23-01--2011(6lb6oz) |
Posted By: tashzmum
Date Posted: 16 May 2008 at 9:13am
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http://www.bebo.com/holz-dreano i have started an online blog on my bebo page for caroline. ------------- Natasha Jayde, 1-01-05(7lb3oz) Caroline Elisabeth, 9-04-08 (4lb15oz) Izabella Kate, 9-04-08(6lb7oz) Lexi Brenna, 23-01--2011(6lb6oz) |
Posted By: Glow
Date Posted: 16 May 2008 at 9:18am
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Congrats Hollie
Glad to hear Caroline is doing well ------------- Mummy of Two Boys B: 2004 K: 2007 |