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Raspberryjam 
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Joined: 07 November 2007
Location: north shore
Points: 4066
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 Posted: 19 April 2011 at 11:14pm |
 hang in there hun, Im sure there is something special in store for you
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http://lilypie.com] 
http://lilypie.com] 
http://lilypie.com] 
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crafty1
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Joined: 03 July 2008
Points: 1024
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Posted: 20 April 2011 at 10:21am |
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Oh georgiegirl - that sucks that AF came again.
FX for your turn soon.
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Georgiegirl
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Joined: 04 June 2009
Location: Ramarama Auckland
Points: 496
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Posted: 20 April 2011 at 10:29am |
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I was really nervous starting this thread... As I am aware that my situation is most pregnant women's worst fear... and I didn't think anyone would want to think about it.
I'm so sorry if I have caused fear or pain for any of you...
I was really just hoping to meet someone in my situation..
But I have been really touched by all the kindness from you all.
I guess in this life we all have fears and we all have pain, whether that is from a special child, a normal one, a husband that didn't stay, a sickness affecting someone we love, or from the hurt of not being able to conceive . Sending out love, understanding and friendship to all out there who are sad today for any reason.
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TTC#2
8th round of clomid 100mg
1 failed IUI.
Waiting for IVF now.
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crafty1
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Joined: 03 July 2008
Points: 1024
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Posted: 20 April 2011 at 6:14pm |
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GG - i don't think having a disabled child is the worst fear, having no baby/baby dying is my worst fear. Disability is just one end of the spectrum of ability and health. It's all normal in my mind and we should see people with disabilities more in daily life so that it is more normalised.
Like you said there are lots of sadnesses in life and having a child of any ability can be both joyful and difficult.
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Georgiegirl
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Joined: 04 June 2009
Location: Ramarama Auckland
Points: 496
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Posted: 20 April 2011 at 6:38pm |
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Very True Crafty1, My little girl is at the very far end of that spectrum unfortunately... :-( Yesterday the Paediatrician referred to her a "profoundly intellectually handicapped". It was the hardest thing I've heard in a long time...
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TTC#2
8th round of clomid 100mg
1 failed IUI.
Waiting for IVF now.
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LJsmum
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Joined: 13 June 2007
Location: Auckland
Points: 845
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Posted: 23 April 2011 at 7:48pm |
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Georgiegirl
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Joined: 04 June 2009
Location: Ramarama Auckland
Points: 496
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Posted: 27 April 2011 at 6:55pm |
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Thanks for your message LJsmum... FX crossed for your friend.. its a scary scary time. Sending a truck load of baby dust her way.
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TTC#2
8th round of clomid 100mg
1 failed IUI.
Waiting for IVF now.
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lil_l
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Joined: 06 October 2008
Location: Central Auckland
Points: 516
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Posted: 28 April 2011 at 8:49pm |
Hi GG,
sorry to hear about AF!
I just thought I'd post, my daughter was born with a genetic condition called Holt Oram Syndrome. Although not too serious, it usually affects and deforms the upper limbs and the heart. We are still in diagnosis stage so are quite unsure of what it has done (besides the obvious arm/hand deformities) and what other conditions she has that go hand in hand with Holt Oram. We're not currently TTC, but please feel free to PM me 
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5th...and final??
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Joined: 18 May 2009
Points: 684
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Posted: 02 May 2011 at 4:35pm |
didn't want to read and run, and hoping to keep this front page for you, so that you can find some friendship and support.
take care of yourself
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Georgiegirl
Senior Member
Joined: 04 June 2009
Location: Ramarama Auckland
Points: 496
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Posted: 03 May 2011 at 9:06am |
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Thanks 3rdtimelucky... I appreciate your message.
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TTC#2
8th round of clomid 100mg
1 failed IUI.
Waiting for IVF now.
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KcP
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Joined: 28 March 2011
Location: Auckland, New Zealand
Points: 113
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Posted: 03 May 2011 at 9:19am |
HI GG, i was drawn to your thread .. My partners son has severe pervasive developmental disorder (Autism). While he is not my biological son, I do care for him every day and DP and i started TTC back in december.
I have type one diabetes from a condition i developed as a child, and one sister has cystic fibrosis and another has downs syndrome and severe cerebral palsey. While Im not in your place with a severely disabled child my heart goes out to you in your search for a 'normal' child.
My partner feared having another child with Autism and I guess because im slightly removed (as in not a genetic link ) i dont have that fear. I just fear not being able to have a child of my own  But also I worry about being able to care for both of children.. Iz needs alot of attention and care but a small baby will need more. At the same time ive heard of alot of stories where siblings have helped the development of autistic children.
Anyway, im rambling..
Edited by KcM
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Small family of three
TTC #1 4 years
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NovMum
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Joined: 01 April 2009
Points: 642
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Posted: 03 May 2011 at 9:24am |
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Hi Georgiegirl, my first baby had a stroke (probably before she was born).. It was the worst time of my life as we struggled to get dr's to even believe us that something was wrong, then we were initially told that she probably wouldn't walk. It was a tough few years, she has had many small operations and loads of physio etc, so I have some small idea of how you feel... We were lucky and she is now doing great...
Anyway I was terrified while I was pregnant with number 2, wondering if somehow something I had done had caused the stroke, but it all turned out fine and we have a lovely 6 month old.
I really wish you all the best
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TTC when #1 is a special needs baby.
