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adele21
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Topic: amniocentesis and Downs Posted: 30 December 2007 at 2:17pm |
hi everyone. I'm looking for your support and experiences about amnio. Our NT scan showed a high risk They like to say increased of 1 in 115 as Im 34. My background risk is 1 in 293, its just my age that makes it quite high. Anyway, the report reccommed an amnio which we have decided to do after some deliberation. I was 11 wks on the dot when i had the scan and baby was about 45mm long crown to rump dunno if this is within normal range. The thickness was 2.1 mm whci MW said was a bit above average but still within normal range. The point is I'm absolutely gutted, fine one minute then in follod of tears the next. I feel like an idiot for being such a drama queen about it but I can't help worrying. Husband is great. I'd like to hear your experiences please not what you personally feel about it as we have made our decision. Also I'm guessing its not free, does anyone know how much the cost? Thanks
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ElfsMum
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Posted: 30 December 2007 at 2:34pm |
firstly 2.2 is perfectly normal..i had that and my mw said im actually low-risk.. and anything under 3 or is it 4 is normal? I'm not sure why that makes your risk so high...I'm 30 and mine is 1:1276 with 2.2mm.. did they see something else as well? some people on here have had amnios I can't personally comment on that but I know for our CVS it was going to be a few hundred...so i imagine amnio about the same?
Edited by kawwww
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CuriousG
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Posted: 30 December 2007 at 8:41pm |
Hiya
I was just gone 26 when I had the fateful NT scan and Chars neck result was 3.5! Because of this, I had a risk of 1:55 which I was shocked about.
I was booked in for amnio but it ended up being a CVS instead because my membranes had not fused. It wasn't pleasant (I ain't going to fib about that) and the wait for the results was just awful too. We only had to wait 2 days tho, they rushed it through cause I actually had a specialist rather than a midwife so I guess he threw his weight around. However, we found out that she was fine and we also found out she was a she which was awesome for us because we wanted a girl.
It cost nothing for us, I am surprised that there is a charge especially when you get referred. Perhaps check with your hospital and or midwife?
Big hugs. I think your result is well within normal range but with the amnio, you will be 100% sure either way whats going on and can decide what you want to do from there.
Good luck and let us know how you get on.
Edited by GeorgiaB
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kezplanet
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Posted: 30 December 2007 at 11:12pm |
Hi, sorry to hear that you are going thru this turmoil. I can't offer you any information on amnio's as havn't had one (had 1st baby at 34, 2nd at 36) the only experience that I have had is with being a support person for a girlfriend in Aussie who had one with her 2nd preg, & she said the worst part was waiting to see that she didn't m/carry and waiting for the results
Hope it all goes well for you and your husband and you get a positive result
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Kerryn, Mum to
Ashlyn(29/3/04), Anastasia(1/11/05) & Abigail (24/02/09)
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Maya
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Posted: 04 January 2008 at 9:48pm |
Bump for Rashika!
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 Maya Grace (28/02/03)
 (02/01/06)
  The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
 Lil miss:Chiara Louise Chloe (09/07/08)
 Her ladyship:Rosalia Sophie Anais (18/06/12)
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Rashika
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Posted: 05 January 2008 at 8:03am |
Ta Maya!
Adele21: I can understand totally how you are feeling, ditto for me, tho my risk is prob way higher as I'm 40 in 5 weeks. Cant remember if they gave me a number, but having the tech bring in the doc to talk to us scares the hell out of ya. It just throws you at a time when we should be starting to relax a little now we have to stress all over again. Even my partner had a wee moment later on, and he isn't easily thrown.
Have you done any reading about NT or amnio yet? And as far as I know there is no cost but I guess I will find out on Tues as I have an appt with the specialists then. There are actually quite a lot of people who get the high risk results, you are far from being alone believe me! Another thing to consider is that you simply have a higher risk only, and the NT test is *at best* just an indication of the possibility, it is simply based on worldwide stats about your age and the measurement.
Most people have perfectly normal babies, and I have everything crossed that you and will be the same.
keep posting on here and I will too ok?
chin up
Edited by Rashika
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AnnC
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Posted: 05 January 2008 at 9:01am |
I have thought about having an amnio with next one as I a will be around 36yrs. Although never had NT scan with others. I can imagine what you will be thinking and its easy to say 'don't stress' as you will - combinations of 'waht if's' and pregnancy hormones.
Is this your first? i had Rhyley at 34 and apart from him being breeched and getting GD (Gestational Diabetes - which I never had with the other 2) All was fine
Good luck and hope all comes back good - if not we are all here for support.
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Ann
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Rashika
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Posted: 05 January 2008 at 9:15am |
yep, my first... I'm a late bloomer
But the positives are, no other chromasonal probs in either families... the only nervy bit was twins in my partners family, but def only one in there!
My coping mechanism is to do my best to put it from my mind and stay busy... tho that has been hard when I've done everything I can think of and end up staring into space... damn even TV has been sh*t over the hols, can't even just blob out to that!
The computer has been great and I have been able to find a whole lot of help thru here, so I'm greatful for that!
Ta guys
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AnnC
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Posted: 05 January 2008 at 9:24am |
oh defin here for you
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Ann
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ElfsMum
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Posted: 06 January 2008 at 5:36pm |
hmm i wonder why amnio free but CVS wasnt.. :(? georgia did you have to pay for yours?I'm sure i saw on the wall at the mw's it was over 200.. but then we didnt have to get it so it was ok in the end..
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CuriousG
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Posted: 06 January 2008 at 7:31pm |
No, we didn't have to pay a cent. We went through a specialist rather than having a MW but we had the proceedure done at Wellington Hospital. I wonder if its free if you are referred for one but not free if you request it? Or if it was because I had a specialist?? I would ask your MW if she knows?
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ElfsMum
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Posted: 06 January 2008 at 7:38pm |
yeah maybe she would have referred me to the specialist..we only got as far as the geneticist at the hospital who deemed me low risk.. (its complicated) so in the end didnt have it..
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pikelets
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Posted: 06 January 2008 at 8:34pm |
Hi Adele21,
You are not being a drama queen - its natural to be upset as everyone wants there baby to be as good as can be.
Im 33 and have 1:185 chance and 3mm nt.
You still have 114 chances of having a "normal" baby so that is good odds. I was very disappointed and gutted as well when we got our results as we had been trying for 2 yrs and all I wanted at the first scan was a heartbeat and know everything was alright.
We decided not to have the amnio as the risk of having a miscarriage and actually having a downs baby was about the same - still quite slim and I didnt want to jeopardise losing the baby. And now Im 34 weeks and everynow and again its in the back of my mind, but Im so glad that I didnt have it and risk losing it altogether. In saying that I know some couples who have had the amnio, had a good result and are so happy they chose to find out.
Sorry - I cant remember what the cost was because we had already decided that we wouldnt have one - I think about $300 if you go private.
Good luck Adele21 - whatever decision you have made, it will be the right one for you
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Maya
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Posted: 07 January 2008 at 8:12pm |
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 Maya Grace (28/02/03)
 (02/01/06)
  The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
 Lil miss:Chiara Louise Chloe (09/07/08)
 Her ladyship:Rosalia Sophie Anais (18/06/12)
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adele21
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Posted: 08 January 2008 at 11:01am |
Hi everyone, thank you SO much for your support and advice and kind thoughts. Going to see Dr Reid at CHCH womens on thursday for a chat about things. still not feeling completely relaxed but yesterday was the first day since Dec 27th that i didn't cry - call me irrational but thats how it is.
Rashika, how did you get on with your appointment?
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Rashika
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Posted: 08 January 2008 at 5:58pm |
adele21 wrote:
Hi everyone, thank you SO much for your support and advice and kind thoughts. Going to see Dr Reid at CHCH womens on thursday for a chat about things. still not feeling completely relaxed but yesterday was the first day since Dec 27th that i didn't cry - call me irrational but thats how it is.
Rashika, how did you get on with your appointment? |
blimmy now THATS a bit of a coincidence.
I rang yesterday as I hadn't received the appt card yet in the mail (still haven't) but my appt is now on thursday arvo as well, with... yes you guessed it Dr R Reid
So I guess we'll both be having a chat. They told me over the phone they will be able to do testing... dunno if that means we will do it or not but wait and see I guess.
Possibly rescan anyway for me as we did have issues getting a decent image.
And no you're not irrational, it is hard to try to look at the positives, but I guess only having a ONE chance out of 134 is not terrible odds, there is 133 possibilities of all being well. I dont actually know what mine is but I suspect probably even higher risk.
But I'm trying to look at it this way:
If I dont stress about what I cannot change, then neither me nor the cherub will stress. And now being back at work is good cos it distracts me.
I could of course feel absolutely TOTALLY different after thursdays appt.
Wishing you all the best Adele21, got you in my thoughts
Edited by Rashika
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Rashika
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Posted: 10 January 2008 at 6:34pm |
ok, well back from the testing ... and I mean testing, the works. At least it was another Ultrasound to check on things, funnily enough the nuchal bit didn't look anything like previously but there ya have it. I found out my risk factor was 1:3
Yup so it was high and I guess I am VERY glad I didn't get told cos I would probably have stressed BIG time.
So we talked and decided to go ahead with the CVS testing, what a blast that was... errr NOT. I was trying my best not to faint (damn hate that!) on the bed, keep my tummy very still and small breaths so as not to disturb my tummy, while they were doing there best to complete the test. (I think my bellydance training came in handy about then... another story!)
They did well I reckon. Partner was fascinated and watching the screen the whole time.
They are going to do the FSH testing as well (at no cost... I was surprised) so will know about at least the downs part by early next week.
Probably jepardising my chances by posting but I guess the good with the bad eh?
So everything crossed for next week...
I really hope well well with you adele, and email me if you want
gwendawilliams@paradise.net.nz
cheers guys
Edited by Rashika
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ElfsMum
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Posted: 10 January 2008 at 7:44pm |
why Cvs and not amnio? is it because it shows a range of gene problems? hope all is well for you!
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Rashika
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Posted: 10 January 2008 at 8:49pm |
Amnios they dont do till 15 weeks, CVS they can do from a lot earlier, tho i was surprised they could still do them at 13 weeks, but glad that at least I have had the test and that part... for better or worse... is over with. Just the result to worry about now, tho I will try my best to not think about it too much.
Amnios actually show wider results than CVS
Was planning a trip away on the motorbikes on saturday, but methinks I wont be doing that right now
Funny part: mentioned the ride to the midwife at the hosital and she said ...wow, she has been thinking of buying a bike laterly as her and hubby do stuff on his and she's decided after about 20 years break that its time to get back on her own. So we had a good relaxing chat about that... nice tension reliever
Edited by Rashika
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Maya
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Posted: 10 January 2008 at 9:22pm |
Glad to hear your appointment and the CVS went well Rashika, but sorry to hear the numbers weren't so good  I was thinking of you earlier on and wondering how your appt was going.
Are you going to find out the sex of baby from the CVS?
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 Maya Grace (28/02/03)
 (02/01/06)
  The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
 Lil miss:Chiara Louise Chloe (09/07/08)
 Her ladyship:Rosalia Sophie Anais (18/06/12)
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