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kmarie View Drop Down
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    Posted: 17 October 2010 at 3:07pm
Hiya,

My lil girl is now 4.5mths old and at her recent plunket visit it was pointed out that she has a tongue tie. Now that we know, it seems really obvious. For example, I'd never really thought about the fact that I've never seen her fully poke out her tongue, but now I can see that she can't. She is fully B/F but we've had zero feeding issues - which I suppose is why it hasn't been picked up.

Anyway, I think it would make the most sense to get onto it now and dealt with surgically, as I'd rather eliminate the possibility of problems with solids/speech before they happen than 'wait and see'. Much as I hate the idea of surgery :S I wish this was picked up earlier!!

So, I have two questions:

1) what does the surgery involve at this age and how best should I go about making it happen? Does it have to be under general anaesthetic?

2) please share your thoughts/stories, particularly if you have a child whose tongue tie was diagnosed late - I'm interested to know what you did and why.

Thanks in advance,
Kristy :)


twins in heaven Oct07
Is 40:11 "He gathers the lambs in his arms and carries them close to his heart."
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first View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote first Quote  Post ReplyReply Direct Link To This Post Posted: 17 October 2010 at 4:27pm
Hi Kirsty
My boy has a tongue tie which sound similiar to your wee kaitlyn. It never caused any problems with feeding (bfing or solids) and his speech is fine.
Really the only time you'd need to get it cut is if it was cuasing bfing problems as if it doesn't cause a problem at that point it is very unlikely to cause a problem later.
My boy can't poke his tongue out well but other than that there are no problem. They actually usually get better as the child gets older anyways.


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Bizzy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bizzy Quote  Post ReplyReply Direct Link To This Post Posted: 17 October 2010 at 4:52pm
i dont think that 4.5 is that late to get it diagnosed anyway. chances are if it isnt causing any feeding issues then it wont cause any other issues either, except maybe affect her ability to lick an ice cream - which is what i was told with my son gabriel. a doc would be able to refer you to the hospital if he thinks it is going to be an issue though.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rainbow Quote  Post ReplyReply Direct Link To This Post Posted: 17 October 2010 at 5:16pm
As above, unless it is interfering with early feeding and latching it is fairly unlikely to cause issues down the line. Tongue ties don't tend to affect speech as much as people think they might - and only then if it was a very severe one - which your daughter's perhaps isn't if she has got this far without any issues.But I can understand if you are concerned so perhaps a referral for peace of mind and a chance to discuss it further would be a good option.


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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jaxnz1 Quote  Post ReplyReply Direct Link To This Post Posted: 17 October 2010 at 5:16pm
DD has tongue tie but the Dr didn't snip it enough (we only just realised when she poked her tongue out not long ago, she has a 'line' going down the middle of her tongue) . We had BF'ing issues which resulted in bottle feeding from about 6 weeks.

We have no eating issues and she eats more than enough solids. Haven't tried her on the licking an ice cream yet though!!

If I were you I would just be tempted to leave it, but if you're concerned have a Dr check it out.


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Jacobsmumma View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jacobsmumma Quote  Post ReplyReply Direct Link To This Post Posted: 17 October 2010 at 7:48pm

Hi, my DS was tongue tied and we had it cut at 6 days old.  I had b'feeding problems in the first few days with bleeding nipples etc and luckily one of the nurses at Birthcare picked it up when he was crying.

 

My local Dr happens to specialise in tongue tie procedures and snipped it while we waited.  She assured us it causes no pain as although its fleshy looking, its similar to cutting nails, no nerves etc.  My DS didn't even cry.   The procedure (plus some b'feeding advise as she's also a lactation consultant) was about $150 max.

 

We choose to go through with it as I was too scared to put him back on the breast due to the incredible pain.  

       
(9lbs 6ozs)


(11lbs 4ozs)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Shezamumof3 Quote  Post ReplyReply Direct Link To This Post Posted: 17 October 2010 at 8:15pm
You are really lucky its not effecting her feeding, Caden had an un diagnosed tongue tie and if we had of known earlier it would have helped A LOT of our feeding issues *sigh* I stopped BF at 4 weeks because of sooo many issues with it, mainly supply issues but he also had trouble staying latched.
Cadens tongue has a little heart shape at the end like a lizard hehe its cute!

Anyways, plunket noticed his when he was 5 months old, and I was really shocked and kinda angry it hadnt been picked up sooner! I had noticed that the little bit of skin under his tongue was short and the end of his tongue was very close to it, but he could still poke his tongue out a bit.
We havent had it clipped though, he is nearly 2.5 years old, and the only thing we have started to notice is that he cant say some letters very well(but that could just be him learning to talk and not the tongue tie) and has a bit if a lisp. The dr said if it really effects his speech then they can clip it very easily at any time, so we are waiting to see how he goes.
Aparently its one tiny snip and they dont even feel it, and it only bleeds a wee bit.

Edited by Sheza

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schnooks View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote schnooks Quote  Post ReplyReply Direct Link To This Post Posted: 17 October 2010 at 8:23pm
Hi, my DD just had it done about 1 month ago, so she was around 9 months. We didn't really have an idea, it wasn't until my SIL pointed it out when she was about 3 months old (as her daughter had had one too).

I went through a lot of pain breastfeeding at the start - now I know why - kept reading on the internet that the pain may be due to tongue tie, but drs,plunket or midwife had never said she had one so just thought I was doing something wrong!

We left it for a while deciding whether we would do anything about it. So about 8 months we went to the doctor who refererred us to a paediatrician. He told us we could either do it 'now' or wait until she was about 1 - but he didn't see it rectifying itself - and same comment re the icecream. My husband LOVES icecream and couldn't bear the fact that she couldn't lick an icecream with him lol!

Anyway... we got it done privately thanks to insurance - about $1800 or so all up though. Yeah it was done under general anaesthetic, something I freaked out about, but it was fine, she just drifted off.

All in all I am glad we got it done, it only took about 20 minutes all up and after she woke up - she had a feed (she was starving due to fasting) and was flirting with the nurses and didn't seem to have any effect on her.
If you have any questions just PM me. I know I had a million questions before we did it!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MrsMc Quote  Post ReplyReply Direct Link To This Post Posted: 17 October 2010 at 8:32pm
i have a friend who at 21 has a tongue tie, it hasnt affected her speech and shes an amazing singer so hasnt affected that either.

But it just want to say that she can lick an icecream, but rather than using the tip of her tongue she uses the middle IYKWIM

so its not all doom and gloom in the icecream department.


goodluck with your decision kmarie
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monikah View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote monikah Quote  Post ReplyReply Direct Link To This Post Posted: 17 October 2010 at 9:39pm
both my kids were FF from real early on cos my milk never came in and when DS2 was readmitted into hosp they realised he had a tongue tie and DS1 more than likely did as well. It was cut quite early but i have never bothered with my oldest. it caused feeding issues but no others so i dont see much point. when they did DS2 they just held his tongue and snipped it with scissors, no anesthetic or anything but i dont know the deal with older kids im afraid.

DH still has a wiked tongue tie. his tongue still looks forked when he sticks it out and he has no problem with speech or anything,


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Shezamumof3 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Shezamumof3 Quote  Post ReplyReply Direct Link To This Post Posted: 17 October 2010 at 10:40pm
Yeah thats like Cadens too Mon, its forked.

My Dr said it would be a simple snip with scissors too, never said anything about it costing sh*te loads! It seems like a pretty simple procedor, so I dont get how it can cost so much!

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kmarie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kmarie Quote  Post ReplyReply Direct Link To This Post Posted: 18 October 2010 at 9:17am
Thanks guys - interesting to hear that it doesn't usually make a difference if it hasn't affected their feeding. I've had a look online and it looks like there's a whole list of other potential issues like cavities & gum problems since they can't spread the saliva around their teeth properly, does anyone know how likely this is?

I guess my thinking too is that if (even if it is a slim if) there is a chance of her speech being affected, then that affect would actually be starting now while she's in the babbling stage even if we can't tell until much further down the track when she's really talking. Does that make any sense?

Woah... $1800 yikes! Makes me wish we had medical insurance I guess as soon as they have to involve an anaesthestist (sp!) the dollars skyrocket.

Was just given the number to contact a local GP who snips tongue ties, but they told me (not surprisingly) they only do it for babies under 6wks old. Am seeing my doctor this morning to find out more, and I guess to get referred into the system?

Please do keep the stories coming, they are interesting to hear :)


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Is 40:11 "He gathers the lambs in his arms and carries them close to his heart."
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bebebaby Quote  Post ReplyReply Direct Link To This Post Posted: 18 October 2010 at 10:49am
My boy had a tonge tie which I found at birth, it got snipped on day 2.
However I had continued BFing pain. So saw a lactation consultant and they agreed that it might need to be snipped some more.
However he was 3 months old at that point and was told it would need to be done under a General.
DH wasn't keen for that so we haven't done anything about it. Only in the last few months has the BFing pain gone away.
My DH has a tongue tie, which was never picked up on, he can talk fine. Its little things like if we french kiss, his tongue is a bit short for it.
Oh and his teeth are better than mine, no fillings!

If you decide to get it done, it will be done by a paediactric surgon.

I guess you need to weigh up the pros and cons.

If you have another baby, then be proactive and check for it. I was told it is a genetic thing. Hence why I looked at my boy as soon as he was born.
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Shezamumof3 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Shezamumof3 Quote  Post ReplyReply Direct Link To This Post Posted: 18 October 2010 at 11:43am
I think if she is feeding fine then I would probably leave it be for now, and then when she starts babbling more and talking etc, see about then, as you may not need to do anything about it.

Like Cadens, it looks bad, but other than a wee lisp he is fine and we wont snip it unless he has more problems as he gets older. Its a lot of money if its not really really necessary.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Paulsmum Quote  Post ReplyReply Direct Link To This Post Posted: 18 October 2010 at 12:20pm
My DS was tongue tied which they noticed in the hospital but said it wasn't causing any problems with latching so they werent going to worry about it... I wish they had done it then... He never had any problems latching or feeding but was not efficient at feeding so would take 40mins to an hour for one feed.. We ended up getting his tongue cut at 3 months.. No general, but it was one of the worst experiences of my life... (it didnt help that that week was the week from hell, the monday i had my gall bladder removed, weds we got his tongue cut and the friday my grandfather died...) i was just so glad DH was there... DH had to hold DS down and the doctor used like a spork to hold his tongue up and then used like needle nosed pliers to squeeze it.. (they dont actually cut it they squeeze it til it breaks)

We decided to get it done as well coz of the speech issues etc later on.. I am tied and had to have speech therapy when i was younger as i couldn't say 'TH' which you need your tongue for!!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rovic Quote  Post ReplyReply Direct Link To This Post Posted: 18 October 2010 at 2:18pm

There are 4 levels of tongue tie apparently and they can snip levels 1 & 2. Levels 3 & 4 aren't as easy to deal with and can need plastic (?) surgery. I was told DS had level 4 tongue tie at 3 weeks and that there wasn't much we could do until he was 2yrs and they would operate if they thought it was affecting speech. But DH (who had just completed Issues in Health Law at summer school) said we needed a second opinion. We went and saw a private maxilofacial guy and 2 minutes after we walked in he snipped it and 1 min after that, DS was feeding and all was great. Cost $132. Have recommended him to quite a few others as was amazing. He is "the ducks nuts" of tongue ties according to the person I got his name from. Would have to agree.

A woman at work said she had a tongue tie that her parents hadn't snipped. She vividly remembers being so upset about her lisp that she snipped it herself at age 3 . She said she hated sounding different to everyone else.


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Post Options Post Options   Thanks (0) Thanks(0)   Quote MrsMc Quote  Post ReplyReply Direct Link To This Post Posted: 18 October 2010 at 4:51pm
ouch she cut it herself??? thats one brave kid
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Post Options Post Options   Thanks (0) Thanks(0)   Quote HoneybunsMa Quote  Post ReplyReply Direct Link To This Post Posted: 18 October 2010 at 7:52pm
I had tongue tie as a kid, it was diagnosed until I was about 4yrs old and that was only because mum was friends with a speech therapist through parents centre or something.

I had no feeding issues so I have been told and fed until 11mths which only stopped because mum had to go into hospital with my older brother for a few days.

I did have to have speech therapy because I couldn't pronounce things properly and because bro was only 2yrs younger he started mimicking me and he had to have speech therapy. I did have an op and vividly remember going to the hospital and going under the anaesthetic then coming out and mum reading to me. Was only a day stay and nothing traumatic don't remember the recovery.


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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jaxnz1 Quote  Post ReplyReply Direct Link To This Post Posted: 18 October 2010 at 8:03pm
Originally posted by Rovic Rovic wrote:

There are 4 levels of tongue tie apparently and they can snip levels 1 & 2. Levels 3 & 4 aren't as easy to deal with and can need plastic (?) surgery. I was told DS had level 4 tongue tie at 3 weeks and that there wasn't much we could do until he was 2yrs and they would operate if they thought it was affecting speech. But DH (who had just completed Issues in Health Law at summer school) said we needed a second opinion. We went and saw a private maxilofacial guy and 2 minutes after we walked in he snipped it and 1 min after that, DS was feeding and all was great. Cost $132. Have recommended him to quite a few others as was amazing. He is "the ducks nuts" of tongue ties according to the person I got his name from. Would have to agree.


A woman at work said she had a tongue tie that her parents hadn't snipped. She vividly remembers being so upset about her lisp that she snipped it herself at age 3 . She said she hated sounding different to everyone else.



OUCHIES!!!!!!!
That's interesting about the 4 levels. I was so p^&**ed off that out of about 10 midwives in hospital, the midwife we had the day before we left hospital finally picked up the tongue tie (we had never heard of it before). My milk didn't even come in and my supply dropped right off. At least now I know what to look for with any subsequent babies!

I think if DD has speech problems once she's talking properly we will look at getting it snipped more.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote MyLilSquishy Quote  Post ReplyReply Direct Link To This Post Posted: 19 October 2010 at 9:55am
im sure ive got tongue tie. im 21 and cant poke my tongue out further than my lips lol. only way it looks like i can is if i push my bottom jaw foward and pull my top lip back lol.

just normally poking my tongue out, i can get it out less than 1cm.


i have never had a speech problem. mum couldnt BF me, so was formula fed, but solids were fine and speech and development were fine.


only thing is if i try to poke my tongue out any further it hurts the bit that connects the tongue to the floor of the mouth iygwim? (im assuming the bit the snip?)




is she is BFing fine i probably wouldnt worry about it unless something was wrong (delayed development, problems with solids etc)


oh and i have no lisp or anything.
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