Well the test is done, poor little monkey needed 2 heel pricks to get all the blood needed and wasnt very impressed, not that I blame him!  Apparently his test came back with elevated levels for galactosaemia, which of course I had to google lol!!

Making the Diagnosis
Someone with galactosaemia is unable to break down and use galactose. The main dietary source of galactose is lactose which is found in milks. This is why the baby becomes unwell, usually in the first week, having appeared completely normal at birth. Galactose and galactose-1-phosphate levels rise in the baby’s blood and he/she becomes ill.

Signs of liver disease including jaundice, lethargy, poor feeding and weight loss are very common. The severity of the liver disease varies a lot. Babies can also be prone to infection at this stage, although this does not continue to be a problem. Cataracts may also be present. These symptoms are not just seen in galactosaemia and the paediatrician looking after your baby will do a range of tests to make the diagnosis.

So he certainly hasnt had any weight loss or feeding issues the little buddha! MW wil give me a phone as soon as she hears back.

thanks Freesia! yeah I agree not very good follow up!!!

Thats what I am hoping Lizzle!  The MW did suggest maybe that could have been the problem but she cant say until the test has been repeated.

I received a random phone call from my midwife on Friday, she had just learned that something with Drews Guthries test came back as not quite right and wants to retest him tomorrow Now he is almost 6 months, and she did say that if he had the condition he would be very sick, and he is a big healthy bonny boy, so common sense tells me it was probably not done right in the first place, but Im still worried!  Im also annoyed that the retest card she was sent never arrived! and we are just finding out about it now